Wednesday, July 22, 2009

Just a Quick Update

I just wanted to give everyone a quick update on Carter-Man. His day yesterday did not start off all that great. His breathing was somewhat erratic and he was not in the best of moods. His trache had to be changed and he needed a bathe because he had thrown up a little. He got a GREAT bath and a great back rub from his nurse (he LOVED it)!!! After that he felt a little better although he was still breathing fast. Even after an eventful morning, he wanted OUT OF THE BED!!! So he did it yet again, and WELL!!! The day before he did not want to leave the room but yesterday he did. Barbara, the nurse, and I took him for a walk around the PICU and boy the staff was amazed. They were all soo happy! Dr. Futterman let out a WAHOOOOOO, Carter-Man!!! He was overly pleased to see him out of bed and moving! We took him over to see the HEM/ONC nurses and they too were elated. He visited with our little friend, Eddy, we took him to see where the helicopters land, and to see the playroom. He loved it! He only had to go on the vent for 7 hours last night. HALLELUJAH! Today has been even better. His breathing is better and he was determined yet again to get out of bed so WE DID!!! He got to go outside today for the first time in a LONG time....he was soo happy and so were all of the staff. We are all so proud of him. He loved watching Mommy shoot some hoops outside (as did all the PICU staff-little did I know they were watching me out the windows during rounds)and enjoyed the fresh air on his precious face!!! I must say it was the most heart warming moment of my life, other than the birth of my children! I am overly joyed for all of his accomplishments- he is truly my hero and inspiration:) He has decided that he wants to get up again later and we are going to do it. The doctors think that it is great!!! On another note...
His second part of his second cycle of Irinotecan and Avastin starts today... PLEASE, PLEASE say extra prayers focused on these treatments and that they continue to destroy the evil within my baby! He starts treatment around 3:30 pm. Again, thank you to everyone for your continued support and prayers. We could not do this alone!!!