Sunday, December 6, 2009

Still Hanging in there.....

Well here we are... 4 weeks out from the day we brought our baby home with the knowledge that his time on earth was limited (from a medical standpoint). Carter has FAR surpassed anyone's expectations. Our wonderful hospice nurse is amazed. In her words exactly, she stated, "There is nothing ordinary about Carter". We all already knew that but who would have thought he would have made it this long. She said that she would no longer give us a time frame because Carter was on his own time along with God. He is so strong. He makes us so proud. He has since the day he was born. He continues to prove what I have always said..."There is something different about Carter". This is what I used to tell everyone about we know why!!!! A mother ALWAYS knows her children best!!!

There really is no new news to report. We did call our hospice nurse Friday because we saw a decline in Carter. She came right away. She, too, saw the difference. Although she said that his time is probably down to hours or days (it is now Sunday so here we are at days), she still stuck to her word that she cannot give us time for him. She said she has been doing this for 10 years and she has never had a child like Carter. I told her she probably never would again!!! We are so thankful for Carter..he is amazing....I look at him and I know he is hearing the angels. I asked him one evening to blink if he saw the angels and sure enough, he blinked his eyes. I asked if they were beautiful...if they were here...and again, he blinked!!!
I told Skip about this and he decided to ask him, too and again....he blinked!! Debbie (Carter's Memaw) asked him the next day and again he blinked. She also asked him if he saw Cha-Cha (my grandfather that passed away recently) and he blinked! She then asked him if he had met his Grandaddy Sale (my dad) and he blinked several times- it was blinks of excitement. This gives us peace. We KNOW the angels are here and wrapping their wings around our baby boy. I will tell you that this is HARD....the hardest thing I have ever had to do and probably the hardest thing I will ever have to do. Each day I wonder if it will be Carter's last. It is heartbreaking but we push through and try and remain strong for Carter, Caroline, and Tommy.

I want to thank everyone for their continued support. Everyday we continue to be amazed by the cards, letters, notes, comments, food, prayers and gifts that we receive. I want to send a special thank you to Sandra and Wendy for their support, love, and devotion. They have been here daily since we brought Carter home on hospice. They do everything they can to help..they clean, they cook, and they provide support. They are AMAZING!!! I am surprised there hands are not cracked due to the number of dishes they have washed! THANK YOU LADIES!!!! I will continue to keep you all posted as things change!

Please continue to pray for my niece, Lauren and the families of Andrew and Delaney.




Dawn Long said...

Dearest Courtney, Skip, Caroline & Tommy,
We think of you everyday and pray for the safe keeping of Carter. Although we do not know what you are going through we are here if you need us. Lots of love to all.
Dawn & Mike Long

mrsrubly said...

i found carter's blog through erin whitmer's FB page! i am so sorry that carter and your family is going through something like this. this is horrible. i came on here last night and will continue to do so everyday. sending love and prayers ya'll way.

E said...

Thinking and praying for precious Carter-Man and his loving family. You will never know how much you have impacted my life by sharing this journey. May God surround you with His endless, boundless love and bless you with a peace that passes all understanding. Praying and praying and praying for you all.

Liz Sanz

mrsrubly said...

still praying for you carter. may god just surround you and your family with strength and peace.

moners said...

I just wanted to let you know that I think about your family everyday. I'm glad that Carter is at home surrounded by people who love him. My thoughts and prayers are with Carter and his whole family.